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Archive for the ‘Resolve Advocacy Day 2013’ tag

Join the Movement and Change the Conversation About Infertility

By Tracey Minella

April 27th, 2013 at 9:28 pm

 

Another National Infertility Awareness Week comes to a close. The events celebrating it are over. The special NIAW banners and badges on blogs and social media will come down. And things are going to return to “normal”.

Is that acceptable?

Are we going to allow the progress made this week to stall for another 51 weeks? Are we going to stop talking about infertility until next April? Are we going to condition the public that they only have to tolerate our voices for a week each year and then “they’ll just fade away”?

Or are we going to change the conversation about infertility? More importantly, are we going to change our one-sided conversation into a two-sided one…where it’s not just us talking at the public and the politicians and our families, but it’s them hearing us and talking back. You know, real conversation.

Talking about infertility isn’t easy. It’s uncomfortable for the listener… and often the speaker as well. Recurrent miscarriage doesn’t make for nice dinner conversation. Talk of low sperm counts can make people queasy. The listener’s mind may involuntarily wander to visions of stirrups and collection rooms. Reactions can vary from awkward embarrassment, to hysterical crying, to unwelcome and misguided advice, to the (preferred) silent, supportive hug.

No wonder many people don’t talk about infertility. It’s so intimate. It’s too close to talking about sex for most people’s comfort.

Yet, if we don’t speak up, we won’t get the support from our families and friends, the politicians and the public. And nothing will change. And too many suffering infertile women’s biological clocks will run out before they can get access to the medical assistance they need to build their families or they will age out of “acceptable” adoption age limits.

How can you keep the conversation about infertility going now that NIAW is over?

If you think of infertility as a disease, like cancer, it may help you to sit your family down and tell them what’s going on. Same thing with close friends. It’s easy to call or write to your political representatives. And if you’d like to meet them in person, there’s a great opportunity to do so at Advocacy Day on May 8, 2013. See RESOLVE’s website for details. http://www.resolve.org/national-infertility-awareness-week/advocacy-day.html

If you aren’t comfortable telling everyone about your infertility, why not just tell someone? One trusted person. A random stranger. A politician. A support group. Or join in the conversation when someone else is talking about infertility.

Don’t wait until next April. Keep the conversations going.

http://www.resolve.org/infertility101 (basic understanding of the disease of infertility)

http://www.resolve.org/national-infertility-awareness-week/about.html (about NIAW)

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Have you talked about infertility with anyone this week?

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Long Island IVF Supports RESOLVE’s Advocacy Day 2013

By Tracey Minella

April 7th, 2013 at 12:57 pm

Long Island IVF’s Town Hall Event at our Melville office last December brought community members and experts together to discuss the then-pending Family Act legislation and how we could all band together and advocate for its passage.

The Family Act, modeled after the existing Adoption Tax Credit, sought to provide a tax credit to infertile couples of up to almost $14,000 to help off-set the cost of infertility treatment for IVF or to alleviate the financial burden of fertility preservation treatment for cancer patients.

Timing may not be everything, but it is certainly important. And in the midst of the frantic “fiscal cliff” political crisis, the timing of the Family Act vote could have been better. It did not pass in that session, but the movement behind it is not dead.

We’ve never been so close to getting mandated financial help from the government in the form of a tax credit for IVF. But the movement needs you…especially since there is an “opposing force” in the political arena known as the Personhood Amendment that threatens not only to block that financial relief, but to affect the very legality of IVF as it’s practiced today.

So what can you do to help? Well, now more than ever, RESOLVE, the National Infertility Organization, needs your help.

Your presence is needed in Washington, D.C. at Advocacy Day 2013 on May 8, 2013.

If you register early enough, RESOLVE will help coordinate appointments for you with your elected officials. No need to be nervous! RESOLVE has everything you need to make this a smooth yet exciting experience. You just speak from your heart. You can be the face of infertility to your senators and representatives.

Imagine how empowered and proud you will feel ascending those majestic steps, walking those halls, and having your voice literally be heard. Be part of the political process. Take photos with politicians (and share them). Meet tons of other women who are coming from all over the country to be part of this historic day, and forge new and lasting friendships. Have a story to someday share with your child about the day you went to Washington to shake things up.

Imagine the difference you could make. Imagine the impact your involvement could have on your own infertility journey or that of your children and grandchildren. Bring your friends and family. Make a special memory. All or part of your trip may even be tax deductible*.

Please consider being part of this annual event if you possibly can do it. Sign up or check out the details, including everything you need to make hassle-free travel and hotel arrangements and fundraise to finance your trip, right here: http://bit.ly/10Ia3cJ

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Are you going to Advocacy Day on May 8, 2013? If so, let us know!

 

*For information on tax deductibility, see RESOLVE’s site, check the IRS website, or ask your accountant.

Photo credit: http://www.freedigitalphotos.net/images/agree-terms.php?id=10021916

 

 

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